Comments on: Caring for babies with G6PD deficiency

By: theresa barles

theresa barles — Mon, 21 Nov 2011 06:38:04 +0000

dear mam AND SIR;
GUP AFTERNOON PO ,PEDE KO PA BA MALAMAN IF PEDE PO SA MAY G6PD ANG GRAVY,BISCUTS NA MY SOYA LECITHIN ,ANONG TOOTHPASTE ANG PEDE SA MY G6PD BATA KASI HALOS LAHAT MAY MENTHOL PO.

By: theresa barles

theresa barles — Mon, 21 Nov 2011 06:34:39 +0000

gup pm
iam a mother of 4yrs old g6pd ok nman siya until now iniiwas ko sa lahat ng bawal po pero marami pa po ako gusto malaman bout sa g6pd yung mga pedeng food sa kanya anoano po ba salamat sa pang unawa

By: theresa barles

theresa barles — Sun, 20 Nov 2011 21:51:08 +0000

dear mam,
iam a mother of four year old girl with g6p i just want to know if she can eat biscuit with ingredients of soya lecithin cause almost of all biscuit have that wat can i do.pls give me a list of food can be eat by my daughter

By: rowald

rowald — Wed, 02 Nov 2011 12:20:13 +0000

2long naman kung anu pwde pakain sa baby ko 1month old palang..anu ba ung dapat at hindi dapat pakain sa batang ma g6pd..sana masagut ung tanung ko..ung specific answer…maraming salamat po

By: jenai

jenai — Fri, 28 Oct 2011 11:30:26 +0000

what is safe medicine if have fever with G6PD.

By: Nur

Nur — Mon, 10 Oct 2011 11:40:38 +0000

Your children are so lucky to have parent like you.
I have G6PD since I was born however I didnt aware that there are a lot of food or drug that cannot be taken. Plus, I am the only child have G6PD although we all girls (4 sisters). I don’t blame my parent as they already consult doctor. However, seems like most doctors not aware or update themselves and not take this seriously. I met doctor who said that I do not have to worry because only certain antibiotic cannot take, fava bean and moth ball. That’s all.
I know that I easily tired, pale, and I get allergy reaction if I ate crab. However, since last year November, my allergy became worst, I got gastric for the first time, losing hair, got blue tatoo whole body after ate chocolates and I felt sick all the time. After did some research, then I realize, all this time I consume foods and drugs that I am not suppose to take. Now…I gradually stop all of it. No longer wear makeup or skincare unless organic. Same goes with supplement. However, still need to read label even organic. Really hard to find ingredient which really safe especially for toothpaste and faminine wash which normally will contain mint or menthol. I even avoid fragrance. People surround me do not understand and I do not how to explain to them since awareness of G6PD here not really high. Normally I will told them I have allergy only. And one more, not sure if I will marry someday since G6PD is inherited disorder and I dont want to pass this to my childrens.
To all parents out there, please take care of your childrens from beginning. Perhaps, with early care, your children will feel much better than I do.

By: cristina blas

cristina blas — Wed, 28 Sep 2011 08:09:03 +0000

i have a 7month old daughter that have a g6pd deficiency and was already done with confirmatory test with a positive result. I am confuse with all the foods & drugs to avoid that might trigger her sickness..please, i am asking a complete list of foods & drugs to avoid.
thank you & godbless

By: michelle barberan

michelle barberan — Mon, 26 Sep 2011 04:57:48 +0000

guys…fava beans is patani in pinas…according to previous posts…nabasa ko lang po…

By: michelle barberan

michelle barberan — Mon, 26 Sep 2011 04:54:50 +0000

hi! i’m michelle, i have a baby who’s turning 6 months.. i just learned this month that my son is G6PD deficient from his new born screening, is it too late? i have given him vitamins and others that might put him at risk…at the same time i’m breastfeeding and since i am not aware of food the i should not, is this going to affect him? so far he is not showing any abnormalities or anything…i’m just worried..please enlighten me..

By: shruti

shruti — Sat, 24 Sep 2011 14:37:35 +0000

hai may name is shruti i have 3 month old baby having g6d5.are they normal child please reply on my mail