Caring for babies with G6PD deficiency

Posted on Friday, January 11th, 2008 under Babies, Children, Diet, Health, Parenting. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.


G6PD deficiency and jaundice

Glucose-6-phosphate dehydrogenase (G6PD) deficiency, one of the most common metabolic disorders afflicting newborns, requires special dietary care for both babies and their nursing mothers. Babies born with G6PD deficiency means their body lacks a specific enzyme, G6PD. Without G6PD enzyme, red blood cells have a shorter life spans when exposed to certain chemicals, usually found in food and drugs. Hence when red blood cells are destroyed (anaemic hemolysis) it will cause anaemia, resulting in dizziness, pale-skin, persistent tiredness, headache, tea-colored urine, abdominal or back pain.

Newborns are by nature born with excess amount of red blood cells. Their bodies will break down excess red blood cells and this process creates bilirubin, a waste product which their liver needs to dispose of. Often, their immature liver are taxed when excess bilirubin are required to be disposed from the body. This causes jaundice which is very normal in newborns. However, newborns with G6PD deficiency, with more than normal excess of bilirubin needed to be extracted from the body, taxes the already overloaded liver even more. As a result, they often experience higher and prolonged levels of jaundice than normal newborns.

How do you care for babies with G6PD deficiency?

Parents should take proper precautions when caring for a child with G6PD deficiency. The main thing is keep your child from being exposed to triggers of G6PD deficiency symptoms.

Newborns with G6PD deficiency may suffer from prolonged and more severe levels of jaundice. Often, if the levels are too high, mothers are advised to stop breast feeding their infants for a short period of time by paediatricians as breast milk might interfere with the liver’s ability to conjugate bilirubin.

After being discharged from hospitals, breast-feeding mothers should avoid consuming certain types of food and medications which might induce anaemic hemolysis in G6PD deficient babies. The list of food and drugs to avoid is fairly similar to the ones a G6PD deficient person should avoid. Analgesics, anti-malarials, sulphonamide drugs should be strictly avoided.

Know which types of drugs and medication to avoid: http://www.g6pd.org/favism/english/index.mv?pgid=avoid

On the other hands, there are types of drugs that are safe to take at prescribed doses: http://www.g6pd.org/favism/english/index.mv?pgid=safe

As you can see from the lists above, the number of drugs that should be avoided is fairly comprehensive. To be on the safe side, make sure every medication for your child is acquired via doctor’s prescription.

Both breast-feeding mother and child must avoid fava beans (broad beans). Fava bean remains the most common food to avoid for G6PD deficient individuals.

Keep your child away from mothballs. Do not let them touch or get close enough to inhale the scent of mothballs. If your newborn inherits some hand-me-down clothes, make sure to wash the clothes clean before your baby wears them. You’d never know the clothes may have been stored in close vicinity to mothballs.

Choose milk formulaes which have no traces of soya or soybeans.

Observe your child’s diet by carefully introducing legumes such as peas, beans, lentil or various types of beans. Some people with G6PD deficiency avoid legumes, but not all. Most people shows no symptoms.

Soy products, blueberries and red wine are also trigger symptoms of G6PD deficiency but again, does not necessary affect all people.

Peppermint oil should not be used around your child’s face. In fact, breastfeeding mothers themselves should refrain from using peppermint oil too.

  1. oliver p navato writes ...

    i really find this topic helpful..my son is a g6pd baby and yet i wasnt that aware of the foods that should be avoided for my sons’ intake..if it would be not that much to ask for a favor,..can i ask for a complete list of foods that i must not serve to my kid.??

    thanks..

    February 23rd, 2008 at 9:40 am

  2. Donna Frazier writes ...

    Thank you for this information. I have 3 children in my family affected by this deficiency as well as my self. I have been looking every where for information. A few years ago I found a page with foods to avoid other than fava beans. Do you have such a list? If so could you please post or email it to me? There are so many doctors who don’t have a clue what this deficiency is all about.

    Thanks

    March 4th, 2008 at 11:19 am

  3. Eleanor Floridis-Principe writes ...

    I to have a son with g6pd and have found that a lot of doctor’s are not aware of the deficiency or if they are they can not tell me what signs to look for in case my son is affeceted. So this site has been helpful thank you. If you have a complete list of what should be avoided I would greatly appreciate if you could send it to me.
    Thanks

    March 30th, 2008 at 6:28 pm

  4. Zie Leff writes ...

    My godson who was just born a a week plus ago, has been diagnosed with G6PD. I too would like a list of the foods to avoid! Can you please email it to me or post it here? Thanks.

    Zie Leff’s last blog post..Penang , a Malaysian restaurant in Edison, NJ

    April 6th, 2008 at 2:48 am

  5. Edwin Hilario writes ...

    Hi! I live in the Philippines and I have a 1 year old child with G6pd. Im not very familiar with the legumes and fava beans. Can you send me a complete lists of these fava beans and legumes. I tried to surf the web for pictures of legumes but it seems that all vegetables and some fruits are legumes.

    Thank you very much and I’ll be waiting for your favorable response.

    Sincerely,
    Edwin

    April 14th, 2008 at 1:03 am

  6. duane madriaga writes ...

    hi! i’m a single mom (21 yrs. old). my son’s (4 mos.)have G6Pd. can i ask a complete list of foods that i should avoid and also the foods i have to serve if he’s already looking for solid foods. thank you very much. i hope you’ll be able to send me those because i really really need help for that.

    April 23rd, 2008 at 4:02 am

  7. Ulysses Ryan Relos writes ...

    Hi I’m a Father to a 7 month old baby boy who has G6PD.. I found this page to be very helpful, if it’s not to much to ask can someone e-mail me with a list of foods and medication to avoid preferrably a list of foods to avoid.. My email address is uly_relos@yahoo.com.. I would kindly appreciate it.. Please continue to update this page with new information about G6PD.. Thank you

    More Power and God Bless

    May 1st, 2008 at 8:23 pm

  8. Linda Kaldani writes ...

    Hi,
    I have three boys with this G6pd , the first time we knew about it is when my son got
    sick and all his body turn in to yallow,
    after a five days the doctors figer it out , and then we had to do blood transfution for him
    thanks god he was okay later, and now he is 15 years old, that happend when he was one year and half.
    later on we tasted my ather 2 kids they have the same thing, what i like to know is there ather food than the fava beans will treger it.
    I have three boys with this G6pd, and iam trying my best to take care of them, I did ask doctors but most of them they do not know what is the G6pd.Since that happened to my son I could not let my kids eat any kind of beans, I was scard somthing like that will happen again, and until they do not eat any kind of beans.The older one is 18 now the ather one is 15, and younger one is 6 years old, the older ones they know and they traying to avoid all kinds of beans since i don’t have the right answer to is it only fava beans or not? can anyone answer me please.
    Thanks to this web sit for the information.

    May 6th, 2008 at 7:58 pm

  9. Girlie writes ...

    Hi! I also have a baby with G6PD. I’m not fully aware of the foods that should be avoided, please email me a copy. Thanks!
    Is Fava beans the Baguio beans here in the Philippines?
    Also, some cerelac have traces of soya, is this safe for my baby. I am starting to introduce solid foods, please advice what food should be avoided. I was advised by our pediatrician that if ever the baby was expose to mothballs or have eaten some restricted foods, he/she will urinate with blood? Is this true?
    Thank you!

    May 6th, 2008 at 11:56 pm

  10. Arlene writes ...

    Hi!Am a first mom and I have a 6months old baby boy has G6PD. His blood type is AB+. Mine is B+ and his father is A+ we can’t donate our blood to our baby so we really have to be careful.

    Food should avoid:

    Fava beans
    red wine
    legumes (beans, lentils, chickpeas, split peas, etc)
    red wine
    blueberries (also applied to food products containing these)
    soya food (any food has soya like tofu, soysauce, etc)

    * Except fava beans, there is no adequate proof as yet of the hemolytic effects of these foods.*

    May 16th, 2008 at 11:53 am

  11. kathy writes ...

    hi my cousin is five months old and he has g6pd the doctor has told us to avoid fava beans but i would also like to know what else should we avoid giving him so if possible can i get a list of things that he should not eat im asking because the baby formula is not holding his hunger anymore so if i could get the list i would appreciate it thank you

    May 19th, 2008 at 1:34 pm

  12. glenda writes ...

    hello everybody just want to let you know that FAVA beans is broad beans in english (fava is an intalian word)

    in the philippines when my 1st child was found out to have G6PD the doctors advised to have a confirmation test at the UP Manila – PGH when they send me the result they enclosed information like the symptoms, food and medicines to be avoided that’s why i was able to control what food and medicines i can give my child. remember to read the ingredients of the food you buy and always remind your pedia that your child have G6PD everytime you go for a check up. You can also give a list of prohibited medicines at the school clinic just in case you child get sick at school. I do this every year when i enroll my children.
    you can search the internet for more infos about G6PD defiency. you can also go to this site http://www.kidshealth.org/parent/general/aches/g6pd.html for more info

    i have my kids eat legumes, taho, food with soy sauce every once in a while, just be care with prohibited medicines

    June 2nd, 2008 at 10:39 am

  13. jon writes ...

    i have a 6 month old daughter with G6pd, if any1 can help me in what to do, foods to avoid so that it may lead to a healthy lifestyle of the child, i would be very thankful.

    to ms glenda, can you email the list of what the PGH had given to you. im from phil too. jbvinoya@hotmail.com

    June 10th, 2008 at 11:29 pm

  14. Sandy writes ...

    Hi,
    My 8 months old son has G6PD and i got the list of meds but i need a list of food to avoid. If anybody can e-mail it to me peaches197511@yahoo.com a complete list of foods to avoid i would really appreciate it.
    Thank you very much.

    June 12th, 2008 at 10:40 pm

  15. boo writes ...

    my son has been diagnosed with G6PD. I am breastfeeding him. do i have to avoid all the food and drugs that he is supposed to avoid? i have been eating foods with soy sauce and soya oil. I’m afraid it might be harmful to him. What should i do?

    June 23rd, 2008 at 4:31 am

  16. quila86 writes ...

    hello,

    I have a 6week old with g6. he has a biliruben level of 10% and i was advised to postpone my breastfeeding. my only problem is most every formula has some trace of soy oils in it so i’m not sure which to use, any suggustions.

    June 25th, 2008 at 2:38 pm

  17. nedie s. adunay writes ...

    tulad din po nyo ako ay ina rin ng may g6pd defficiecy, im always afraid what will happen to my son if he expose sa mga bawal sa kanya. tulad din po ninyo na nagnanais na magkaroon ng sapat na impormasyon o kaalaman tungkol dito.

    June 27th, 2008 at 12:50 am

  18. sim chua sy writes ...

    My son is now about 1 month old. Last 2 weeks, doctor(Pedia)called and informed us that our baby is positive with G6pd deficiency at his newborn screening test. Doctor instructed us to to have my baby be retest again to confirm with this dficiency and it was confirmed positive. I have already red about list of foods, medicines even chinese medicines to avoid. But still im bothered to what food to avoid since im now nursing my child because im stil confuse with the FAVA beans and Legumes stuff. Do you have complete list of foods to avoid other than mentioned above. Pls email me. Ill gladly appreciate it.

    June 27th, 2008 at 11:21 pm

  19. sim chua sy writes ...

    Heres my email add simchuasy@yahoo.com.ph

    June 27th, 2008 at 11:23 pm

  20. jotech writes ...

    How would you call fava beans in other languages?

    Arabic: Foolle;
    Catalan: Fava;
    Chinese: Tzan-Doo;
    Dutch: Tuinboon;
    English: Fava or Broad Bean;
    Farsi (Persian): Ba-ghe-Leh;
    French: Fève;
    German: Favabohnen (Fava bean), Dicke Bohnen (thick bean), Saubohnen (sow bean);
    Greek: Koukia (“Fava” is an appetizer made from dried fava beans);
    Hebrew: Polle;
    Hungarian: Lóbab
    Italian: Fava (pl. fave);
    Kurdish: Paqla;
    Malay: Kacang Parang;
    Spanish: Haba;
    Turkish: Bakla (“Fava” is an appetizer made from dried fava beans);
    Urdo (Pakistan and India): Lobhiya, Rajma, Jheam;
    Thai (Thailand): two-ah pak-ah.

    June 28th, 2008 at 2:46 am

  21. jotech writes ...

    this site may help:

    http://g6pddeficiency.org

    i have a G6PD grandchild and was currently browsing the web and i happen to open this site.

    for the complete lists of drugs that should be avoided, try this site:

    http://www.g6pd.org

    they have a wide range of lists, including trade names and manufacturers around the globe. just register which country you’re in..

    hope this helps..

    June 28th, 2008 at 2:54 am

  22. mel ignacio writes ...

    i also have a G6PD child anh he is 3 months now. my pedia adviced me to let it be reconfirmed but due to my hectic sched we have not gone there yet. my son is not showing any sympthoms since he was born. is there a possibility that he is not a G6pd patient? what do you think? please advice me.

    July 1st, 2008 at 3:03 am

  23. merben writes ...

    i also have a 1 month old daughter with an G6PD defeciency,,,if anybody can help email me “m5romero@yqahoo.com” the complete list of food to avoid i would really really apreciate it. Thank You Very Much!

    July 16th, 2008 at 2:50 am

  24. merben writes ...

    my email ad : m5romero@yahoo.com

    July 16th, 2008 at 2:53 am

  25. nancy bautista writes ...

    i have a niece who have a g6pd, can you send me a complete list of food to avoid i would really apreciate it. Thank you very much.

    July 31st, 2008 at 11:51 pm

  26. Jaslynn writes ...

    I have G6PD & for your information, we have to avoid Fava Bean & certain chinese medicinal herbs. Most importantly, do not self-medicate (drug allergy) & always bring along the medical certificate for every visit to the doctor. This is for lifetime & knowledge about these food & drug allergies have to be passed to deficients when they start schooling.

    Look out for symptoms & consult the doctors if there’s any cause for worry.

    Basically, life will be as per normal. :)

    August 5th, 2008 at 12:30 am

  27. jan writes ...

    hi..i have a son who is positive for G6PD..i jst want to have a complete list of foods and medicines that should be avoided.thanks..pls send it to my email.it will be a great help.

    August 5th, 2008 at 4:41 am

  28. myrnalen writes ...

    hi im myrnalen.i also hav a son who is a g6pd and he s 2 months now.i read from the nternet that f u r breastfeeding ur baby,you should also try 2 avoid drugs n food dat r not good 4 them.can u also help me with the list of food dat are not safe 4 them 2 take. thanks

    August 15th, 2008 at 7:51 am

  29. myrnalen writes ...

    my email ad s myrnalen.falcasantos@yahoo.com

    August 15th, 2008 at 7:52 am

  30. ahyie writes ...

    Hi Myrnalen! My 2 daughters have g6pd and if you are from Manila you can go to National Institutes of Health (NIH) to get copies of medicines and food that are bad for G6PD positive. My husband and I are also giving my 1 year old daughter small quantities of chocolate chip cookies and so far there are no negative reactions.

    September 4th, 2008 at 8:38 am

  31. Melanie Watson writes ...

    My nehphew 9 1/2 months old has just been diagnosed this week and has had a blood transfusion so I would also like a list of foods for him to avoid melanie_310@yahoo.com.au thanks

    September 4th, 2008 at 9:50 pm

  32. john sexon writes ...

    i have a 3 week old son diagnosed with G6PD can anyone send me a list of food to avoid? thank you very much

    September 11th, 2008 at 11:33 pm

  33. marissa corpuz writes ...

    hi..my son is 10moth old and with g6pd…pls email me the complete list of foods to be avoided.thanks

    September 23rd, 2008 at 2:07 am

  34. marife writes ...

    My son is a G6PD baby he is now 4 years.But I just want to have a complete list of foods and medicines that should be avoided. I hope you’ll be able to send me i really appriciate it. Thank a lot.

    marife

    September 24th, 2008 at 9:31 pm

  35. arlene writes ...

    hi…my son who’s now 8 wasdiagnosedwhen he was 5 days old. His bilirubin level went up to 498, double volume transfusion was immediately given to him and my husband and I didnt have the time or option to donate our blood. We were told that because of the high volume of bilirubin in his body he could or would have been affected and his brain damaged. And the scariest thing is seeing your newborn twitching and pulling his neck which are the early signs of cerebral palsy. With our endless prayers and closely monitoring his milestones, he is now a bubbly young boy with lots of smile. He wears his medic alert bracelet and we make his teachers aware of his G6PD.
    I noticed that kids who has them are mostly filipinos…? (after reading the comments). Fava beans are patani sa atin…sa pinas

    September 29th, 2008 at 12:14 am

  36. ronalyn writes ...

    hi I too has a baby with G6PD defecient, can i have a list of foods and drinks that can be avoided. please. thanks

    October 1st, 2008 at 3:17 am

  37. michelle writes ...

    meron lng po ako gustong malaman tungkol sa g6pd.. ang aking pong anak me isang taon na.. anu ba ang maaring gatas na pwede kong ipainom sa kanya?. breastfeed po ang aking anak subalit dahil nga kylangan ko ng mgtrabaho ay maiiwan ko na cia.. kya nais ko po itanong senyo kng anu ang gatas na pwede nia inumim na d makka apekto as knyang sakit. marami po slamat!

    October 6th, 2008 at 4:50 am

  38. annabel writes ...

    hi…I have a 4mnth old baby girl w/g6pd and I want to have a complete list of food(esp. common foods) to be avoided and also want to know if soya oil & lecithin is included in the foods that should be avoided because I noticed that most of the infant formulas have it. Can you tell me what brand of milk is safe for my baby.thank you so much.

    here is my emailad:
    whackz011@yahoo.com

    October 9th, 2008 at 10:21 am

  39. alzen cells writes ...

    Can I have also the list of drugs and foods to be avoid. I have a 3 month old child with g6. Thanks and God speed. alzen_18@yahoo.com

    October 14th, 2008 at 1:00 am

  40. prem writes ...

    My nehphew is 10 days old has just been diagnosed this week and has had a blood transfusion so I would also like a list of foods for him to avoid prema.madhu@gmail.com

    October 14th, 2008 at 6:20 am

  41. lyn writes ...

    hi i find this site really useful. i have a baby boy of 7 months with g6pd deficient. can i pls get a complete list of all food stuff my baby and i as feeding mother should avoid, to f_leena4@hotmail.com thanks

    October 14th, 2008 at 10:54 am

  42. josie writes ...

    Hello po!meron po kasi akong anak na baby girl 9 months po siya na may g6pd deficiency.nais ko lang po sanang humingi ng kopya para po sa mga pwede po niyang kainin.para maiwasan ko po ang di dapat niya makain.salamat po..

    October 18th, 2008 at 9:52 am

  43. sheila writes ...

    Hi everyone…Im here for the same reason, maybe slightly different…
    but my question is..
    I have G6PD deficiency and I was wondering, because I was told that since I am not a carrier, rather someone that actually has the deficiency, I was told that my kids (when I have any) will have it also. Is that true?

    October 20th, 2008 at 10:36 pm

  44. melissa writes ...

    i have a 2mo old son who is G6PD+ as well. we werent able to get his newborn screening result until he was 6weeks old. so he has been fed and applied aceite alcamforado for quite sometime without knowing it is bad for him. we went to NIH at UP-PGH and will get results next week. im worried about the camphor content of alcamforado. so far since birth, my baby just had slight jaundice and i hope everthing is okay with him. how much is the damage, if ever there is, with the camphor thing? would also appreciate if anyone can share the complete list of foods and other things to avoid. thanks.

    October 21st, 2008 at 11:10 pm

  45. melissa writes ...

    email address is lissmont@yahoo.com

    October 21st, 2008 at 11:10 pm

  46. Melinda Quizon writes ...

    Hi! I have a 1month old nephew na may g6pd which was we first known thru her newborn screening result. can i have the list of foods which can avoided and safe for her? thank your very much.

    October 24th, 2008 at 10:33 pm

  47. coro writes ...

    ano po formula milk na pwede sa baby since I will start working this month. please help

    October 25th, 2008 at 10:37 pm

  48. coro writes ...

    ano po pwde formula milk for my baby since I am a working mom

    October 25th, 2008 at 10:38 pm

  49. JA Guerrero writes ...

    hi everyone, you are welcome to join this group i formed in yahoo! for parents with G6PD babies. it’s a support group for all of us who need info and for us to learn from each other.

    that way, we only open our yahoo! account. for those interested, please send an email to: G6PDsupportgroup@yahoogroups.com

    thanks!

    JA Guerrero

    October 27th, 2008 at 9:15 pm

  50. billy from makati, phils. writes ...

    hi to all concern..

    please help me,coz i have a baby boy 1 month with g6pd.. kindly send me the list of drugs and foods to be avoid.. here’s my email add vhilen12@yahoo.com

    thanks to all and God bless

    October 29th, 2008 at 8:53 am

  51. joy writes ...

    hi!

    i have a 2 month old baby boy na g6pd+, gusto ko po sanang humingi ng list ng mga foods and drugs na kailangang i-avoid. tnx!!!

    jclyn0313@yahoo.com

    November 12th, 2008 at 4:23 am

  52. jojo writes ...

    i have a 3 months old son wo have g6pd . pls advc what the exact food to be avoided. as well as the medicine… for a 3 months old with g6pd what are the best medicine to take when may cough and sipon sya??? pls help….

    November 18th, 2008 at 1:21 am

  53. jhelai writes ...

    hi am also a mother of a 1 year old with g6pd and am also a therapist for special kids…want to know if you give ascorbic acid as vitmins for your chil…..

    thank you so much

    December 1st, 2008 at 6:09 am

  54. hershe writes ...

    hi! i also have a son who is g6pd deficient, his now 9 mos. old. after we got the confirmation from UP- NIH that he is indeed positive, we were scheduled for a seminar/ orientation regarding it. I advised those who wants to know the details of g6pd to call UP- NIH for the schedule of the seminar. it is very helpful for us parents to be fully aware of this deficiency. i’m sorry i was not able to keep the number of UP- PGH. hope this helps. God Bless!

    December 3rd, 2008 at 6:45 am

  55. annabel writes ...

    hi here is the number of UP-NIH 303-19-88/ 307-07-80/307-07-88. you can also get a list of foods and drugs to be avoided though them

    December 7th, 2008 at 2:34 am

  56. maricel writes ...

    i intoduce now to mu child a solid food but cerelac has a traces of soya. please help me waht food i give to my baby.

    December 15th, 2008 at 2:51 am

  57. marjorie solis writes ...

    good day, my son newborn screening result with a higher than a normal baby.but the doctor just advice us to change our milk formula to NAN One H.W.so we did.but didn’t tell us that he is positive with g6pd.so a month after i notice he’s he breath faster than a normal.just this month 2 weeks ago he past away with no symptoms of g6pd.
    as a mother i would like to know how to prevent g6pd.during pregnancy, after birth and breastfeeding…pls inform me well about this marjmond25@yahoo.com.thanks

    January 19th, 2009 at 1:48 am

  58. marjorie solis writes ...

    please inform me on how to prevent g6pd during pregnancy, after birth and breastfeeding. thanks. marjmond25@yahoo.com.

    January 19th, 2009 at 1:51 am

  59. arleen writes ...

    hi. i too have a g6pd baby. may i ask if those candies, chocolate bars, cookies, biscuits, milk, etc., containing soy lecithin & soy oil not good for my baby? his milk formula has soy lecithin but the doctor prescribed and said it’s ok for him. i also want to ask if aceite manzanilla is bad for him. pls send me a reply to this email. arleenada@yahoo.com
    thanks and more power!

    January 19th, 2009 at 10:33 pm

  60. cristine writes ...

    elo. i also have a 3mos. old daughter with g6pd. i’m not that aware of this deficiency. my daughter’s navel is turning black and i’m giving her formulated milk when i’m not around. the brand name of the milk is bonna. will u please send me the complete list of foods and drugs to be avoided. thank you and Godspeed.
    my email add is cris_upv@yahoo.com.

    February 21st, 2009 at 12:57 am

  61. marian balbuena writes ...

    ano pong gatas ang maari sa aking anak ?iwas po ako sa gatas na mayroong soya

    February 22nd, 2009 at 10:15 am

  62. jackie lynn writes ...

    can i have all the complete list off food not to take…my son have g6pd…thnaks

    February 26th, 2009 at 2:51 am

  63. luisa writes ...

    hi.. i have a month old son with g6pd.. he is not having a regular bowel movement, it takes 3-4days interval. I’m a bit anxious about it, I haven’t brought him to a pedia yet. could it have something to do with the disease(g6pd)? or with the milk (it’s s26 gold)? I would appreciate any comment or advise. Thanks! Godbless
    My email ad is : lj_0122@yahoo.com

    February 27th, 2009 at 10:20 am

  64. jojo writes ...

    i have a g6pd 6 mos old baby.. and now im introducing him a solid food pls give me a list of food that would fit to him… my email add: pangitipang@yahoo.com

    March 1st, 2009 at 7:39 pm

  65. marie cris magayano writes ...

    i’m from the philippines and my nephew’s newborn screening result says that he is g6pd deficient.he is going to be a month old this march11..i also want some list of infant milk that are present in the philippines that are safe for him..

    March 4th, 2009 at 6:53 am

  66. Claire writes ...

    helo! can anyone send me the information copies that the National Institutes of Health,Manila is giving to those confirmed G6PD deficients.., thanks! mcjj13@yahoo.com

    March 5th, 2009 at 2:43 am

  67. ANALIZA MALANA writes ...

    hi,
    i gave birth last nov 4 to a baby boy and i have to newborn screen him and find out that he has G6PD and until now we dont have 2nd screen can i have him screen again if the G6PD was gone because i dont see any symptoms of G6PD. is there a possibility that he is not a G6PD PATIENT. Pls advise me…
    THANKS AND GOD BLESS..

    March 6th, 2009 at 11:47 pm

  68. Dhona writes ...

    Hello,

    My baby is 2 months old now, he is diagnosed w/ G6PD deficiency, but we don’t have enough money for confirmatory test. Can I have list of foods and drugs that should be avoided? I hope that with this list, my son will be able to survive this kind of illness. We really do hope that we can take him to hospital for further testing. He is my first child and I am afraid and confuse on how to take care of him knowing he has this deficiency. There are no hospital here in our place that specialized in this kind of illness. And we don’t have enough knowledge on this, so I really don’t know what to do.

    Hope someone can help us. I love my baby so much….

    March 15th, 2009 at 11:42 pm

  69. Annareza Sexcion writes ...

    My 3 month old son is g6pd deficient. I just want to get more information regarding those stuffs that will trigger the deficiency. I’m also breastfeeding him and just found out that i also have to avoid the foods that might trigger it.When I’m working, his milk in NAN HW. However, Vitamin K is also present in this formula? Is this safe?Is there a list of formula designed for g6pd deficients?I, too, have observed that most formula containe soy lecithin and traces of soy oil in it?May I also get a copy from the National Institute of Health, Manila to those confirmed g6pd deficients?here’s my email-mamards13@yahoo.com. Thank you.

    March 23rd, 2009 at 5:35 am

  70. chesison25 writes ...

    my son is g6pd deficient. im introducing him to solid foods, can u give me list of foods that are safe for a g6pd deficient like my son
    thank you so much

    March 28th, 2009 at 4:38 am

  71. mrv writes ...

    my son also has g6pd and i would really appreciate it if i could get a full list of all the food that i should not be giving him.
    thank you

    March 30th, 2009 at 5:48 pm

  72. g6pdph writes ...

    Add this GROUP on facebook:

    G6PD deficiency Ph.

    April 15th, 2009 at 10:10 pm

  73. g6pdph writes ...

    Facts & lists of Food, Chemicals & Drugs to be avoided:

    http://www.nsrc-nih.org.ph/g6pddef.php

    :)

    April 15th, 2009 at 10:23 pm

  74. Babes BJ writes ...

    Hi i’m from the philippines. I’m a mother of a 5 months old baby boy who has G6PD.. I found this page to be very helpful, if it’s not to much to ask can someone e-mail me with a list of foods and medication to avoid preferrably a list of foods to avoid.. My email address is mernzbj@yahoo.com..I would kindly appreciate it.. Please continue to update this page with new information about G6PD.. Thank you and God bless….

    April 16th, 2009 at 9:08 pm

  75. Danielle writes ...

    i found this web sit very helpful, can you please mail me a list of foods and meds thats she can not have. i an 25 years old and this is my first child i must admit its pretty scary knowing my child have gp6d.

    April 24th, 2009 at 6:35 am

  76. eliza writes ...

    i find this site very interesting and informative.i know that i will learn more from here enable to bring up my child with g6dp.i also want to ask the complete list of food medicine to avoid from Nat.Inst. of Health.and if somebody able to attent the seminar in PGH,pls.send me advices of what u learn from there.my son is 2yrs old now and i test him 2x and i notice that it lessen more the result with 2nd test.im thinking maybe it trigger without symptom.before its 26 then fall to 5 na lang so it worsen his condition.may i know if anybody know how to increase its level.bawal din ba ang alcamporado,efficascent at omega.

    April 25th, 2009 at 8:31 pm

  77. shiamae bongco writes ...

    hi ,
    my youngest baby is a G6PD positive and I would like to have a complete lists of medicines and foods that are to be avoided and which is not.This is really a big help for me if you can send me this. tThank you and more power! God bless you….

    April 26th, 2009 at 3:54 am

  78. shiamae bongco writes ...

    my e mail add is shiamae33@yahoo.com

    April 26th, 2009 at 3:55 am

  79. JOANNE Q. BENAVIDEZ writes ...

    my 7 mos old daughter is g6pd deficieNT. CAN U PLS SEND ME LISTINGS OF FOODS/ DRUGS TO AVOIDED.
    IN CASES OF FEVER/COLD, CAN I APPLY THE EXTRACT OF AN HERB (OREGANO) TO THE SKIN OF MY BABy? HERE IN THE PHILIPPINES, THEY USUALLY USE IT AS MeDICATION FOR FEVER.

    May 4th, 2009 at 1:21 am

  80. jennie mae mahimpit writes ...

    i’m jennie mae, 22yrs old, a single parent to my son who has a g6pd. please send me all the data that i need to very much aware for my son’s health. the food and drinks, and drugs to be avoided. tnx so much

    May 4th, 2009 at 10:26 pm

  81. jennie mae mahimpit writes ...

    my email add is jenniemae1117@yahoo.com

    May 4th, 2009 at 10:29 pm

  82. Carole S. Yorac writes ...

    Hello everybody,I have two sons positive with G6Pd, the eldest is 2years and 6mons while my youngest is 3weeks now.Please email me (cas.yorac@yahoo.com) all foods, medicines that should be avoided with g6pd. Your kind respond will be a great help for us parents to cater our children’s needs with g6pg. More power and God bless us all.

    May 5th, 2009 at 10:54 pm

  83. armie writes ...

    Hi ! I have a 3yr. old son who was screened with g6pd. I have been very careful in giving him food and milk during his infant days unfortunately just a couple of days ago his nanny forgot his forgot about his allergy and gave him beansprout for dinner. The following day I saw several rashes on all part of his body. I brought him to his pedia and he was given citrizine (Virlix drops) for a week. But after a week his rashes is still there. I submitted him again for another blood count and just like the other week it turned out to be ok infact his RBC count is gaining. But just like any mom I’m a bit worried, although there is no change in my sons physical activities I still want to be re assured that he is really ok. Is there any other test that will really make me feel assured that his ok.

    May 20th, 2009 at 11:25 pm

  84. armie writes ...

    For Eliza :

    Hi Eliza ! I think mentholated formula is a big NO NO for our child. It was listed in the brochure given to us at NIH. I hope you were able to get hold of those list. It includes medicines that should be shown to your Pedia everytime you visits them just to make sure that they will not give us the wrong dosage or the wrong medicine that might trigger our child’s allergy.

    If you dont have the list just email me at armie_borero@yahoo.com. I will gladly scanned my copy and send it to you.

    May 20th, 2009 at 11:38 pm

  85. armie writes ...

    Hi Dhona !

    Can you give me your email address so I can send you the list as well. By the way It is really best to have a confirmatory test as this will give you an idea with regards to the severity of your child g6pd. As they always say its better to be safe than sorry.

    May 20th, 2009 at 11:42 pm

  86. dinah ilagan writes ...

    is there a medication for this deficiency? what hospital have the complete facilities to cure this?? plc.. let us know.. tnx

    June 2nd, 2009 at 11:56 am

  87. myles parinas writes ...

    im a working mom, and im really bothered of the result of the newborn screening of my 7mo son.he had already taken lots of solid foods, especially cerelac (which contains soya) before we found out of the result. its really hard for me not taking care of my son personnally, im always thinking of his health condition. we never had the confirmation test yet, i just hope and pray that he is negative of the result. WITH THE HELP OF THE ALMIGHTY GOD, LET US KEEP ON PRAYING OF OUR KIDS HEALTHY CONDITION.IM WITH YOU GUYS!!!

    June 2nd, 2009 at 8:36 pm

  88. ma. theresa writes ...

    good day. I really find your site informative and useful. I have a 1 month old baby who has this so called g6pd. I want to have a list of those foods that is not good for my baby. and is this deficiency be treated? thank you very much.

    my eadd is mariner_3233@yahoo.com.ph

    June 3rd, 2009 at 9:29 pm

  89. JENNIFER QUIST writes ...

    HI,I HAVE A ONE YEAR OLD DAUGHTER WHO IS G6PD FULL DEFICIENT.I HAVE TRIED FORMULA [MILK] BUT FOUND OUT THAT MOST OF THEM ARE NOT GOOD FOR HER PLS CAN U HELP ME ON RIGHT FORMULA AND ALSO A LIST OF FOODS AND DRUGS TO AVOID.PLS SEND THE INFO TO MY MAIL THANKS.

    June 5th, 2009 at 8:26 am

  90. Melissa Jurilla writes ...

    Hi i have a baby girl, She is 1 yr. and two momnths now. She is very healthy.But she has G6pd…I just tried to avoid all the prohibited foods and other chemicals. espescially, the mothballs, and menthol…
    I have a question all the formulas has soy lecithin, is that safe? I did asked the a doctor, she said its okay coz its not hte main ingredient of the milk…i just hope it is relly safe.

    June 9th, 2009 at 6:53 am

  91. susan melanie b. cunada writes ...

    good day!thanks so much for the info but please can you email me the complete lists of food & drug for the g6pd. i have a 4 yr old son who was also positive on it. your prompt respond will be greatly appreciated. God bless u all!!!!

    June 11th, 2009 at 11:08 pm

  92. Mae writes ...

    hello…I have a 8mos old son w/g6pd. I switched his milk to NESTOGEN 2 only to find out it contains SOYA LECITHIN and I’ve known that most of the milk contains this ingredient and soya oil.Do you think the said ingerdient in most milk would have a big effect to my baby? thank you

    my add: eam121578@yahoo.com

    June 13th, 2009 at 11:00 pm

  93. kofi writes ...

    my three weeks babyboy has been diagnosed of g6pd and in fact i am hearing it for the first time.ii have got some information from your site and i find it very useful. i want to ask if it a lifetime deficiency.

    June 17th, 2009 at 2:24 pm

  94. DKPORT writes ...

    My 1 month old Son has G6PD deficiency and what scares me a lot is the worst case that could happen to a child with this kind of deficiency. According to the attached papers of the test result… the worst thing that could happen to a baby with this kind of deficiency is mental retardation or death. I’ve been reading from one website to another looking for cure but as of now the only information available is prevention. Later we’ll go to his pedia to consult about this. I’m praying that his condition is moderate and nothing big that we should worry about. I’m also hoping that someone somewhere could think a way to cure this deficiency.

    I’m also planning to put a separate page for this on my website for everyone’s awareness.

    June 17th, 2009 at 4:34 pm

  95. Melissa Jurilla writes ...

    Hello, i asked another doctor she said, its safe for the baby even if the milk has soy lecithin,coz, its not the main ingredient of the milk. As of the moment, im asking someone, if where can i find a toothpaste na walang menthol.. we all knew mint or menthol are not allowed for them. And yes it is a lifetime deficiency, prevention is the only way that we can save them. But there are some babies na tolerable for them ang mga bawal. Pero syempre it is very scary to try kung kaya ng anak natin or hindi. Ako i avoid using liniment, mothballs,
    no soya or soy sauce sa food niya. check it out also na you are not using soya oil.Ampalaya also di pwede yan. As of now wala pang gamot for this….but let us pray na magkaroon. The g6pd child has an immunity for malariarism, if they will be bitten by a mosquito carrying a malaria safe ang baby, kasi di mabubuhay sa katawan ng g6pd child ang malaria.
    Helpful talaga ang website na to.tanx

    June 22nd, 2009 at 9:06 pm

  96. Melissa Jurilla writes ...

    follow up lang, my baby was checked twice, one in the hospital, the other one is in UP manila, yung laboratory nila dun, that is a confirmatory test, to make sure na talgang may g6pd ang baby natin, and thay will give you a list, lahat yung mga foods, mga medicine and some chaemicals…for the other mommies na wala pang confirmatory test ang baby, do it now , kasi there are some possibilities na mag negative pa ang baby niyo, take your chances…ako wala na talaga kasi twice na siyang na test after three weeks, tumawag agad ang hospital sa akin na they found out na may defeciency, and then they will advice you to go to UP malapit sa PGH. For another test, yan na nga ang confirmatory test…better have another check up..isang symptoms na makikita niyo sa baby instead of turning yellow is the urine, if it turned into an amber color, bring your baby to the hospital for furhter check ups…
    God Bless us All!!

    June 22nd, 2009 at 9:19 pm

  97. eileen writes ...

    im a single mom and my son has g6pd.. im looking for a list of food to avoid because im worried for the further diseases because of lack of information regarding to g6pd i hope u could send me a copy and give some tips in taking good care of my son thank you.

    June 24th, 2009 at 4:53 am

  98. Armie Sotto-Borero writes ...

    Hi Guys read most of your queries ! I have a 3 1/2 old boy. Thank God he is very much healthy. As mentioned by one one the moms here, G6PD is not curable hence we parents must make sure they don’t eat foods that will react to the said allergy. With regards to MILK FORMULA I have been giving my son LACTUM since birth. If you notice lactum also has Soybean as part of the milk but the said soybean is just an alternative should one one the ingredient becomes scarce which I learned from my husband na napakaslim ng chance na malagyan sya ng soybean ( My husband is in Food trading business ). Its up to you guys if you want to try the said product.

    June 30th, 2009 at 11:53 pm

  99. Melissa Jurilla writes ...

    hi eileen, can i have your eamil add? para masend ko sayo ang list…

    July 4th, 2009 at 12:06 am

  100. jennie mae writes ...

    hey guys, it really is so hard to deal with a g6pd baby. halos lahat, bawal.. miss melissa, pki send din saken ng list.. salamat po. im on number 79

    July 10th, 2009 at 8:54 am

  101. karen gangay writes ...

    i have a son too has a G6PD Deficiency, i just want to know that if all food has a food coloring make affect to my son? and im looking for a list of food to avoid my son deficiency, please send to my email..

    your website is so nice for the all the mothers who have a child deficiency..

    July 14th, 2009 at 10:34 pm

  102. CRISTINA writes ...

    PLEASE SEND ME THE COMPLETE LIST OF FOODS THAT ARE NOT ALLOWED FOR G6PD.

    July 23rd, 2009 at 1:42 am

  103. JENNIE MAE MAHIMPIT writes ...

    HEY GUYS, ANG HIRAP TLGA KAPAG YUNG TAONG NAGBABANTAY SA ANAK MO HINDI ALAM KNG ANO ANG BAWAL AT KUNG ANO ANG PWEDE. I AM ALWAYS SCARED LIKE ON MY PART, IM STUDYING AND MALAYO AKO SA KANYA. kaya dapat aware tlga yung mga taong nagbabntay sa mga anak natin. wag natin clang pabayaan na bigyan nila ng kung ano2x lalo na tlga yung mga bawal..

    July 23rd, 2009 at 4:33 am

  104. JENNIE MAE MAHIMPIT writes ...

    miss eileen, dka ba nabigyan ng list ng avoided foods and drugs ng UP???? they give it freely upon giving you the confirmation about your baby’s condition po. ako meron pero, 2007 pa ung last na na-encode dun eh.. try to ask nlng..

    July 23rd, 2009 at 4:36 am

  105. JENNIE MAE MAHIMPIT writes ...

    miss melissa, do you have latest list of the avoided foods and drugs, dko kc alam kng updated pa ung mga list ko or may nadagdag nanaman na bagoo. pls send it to mee too. tnx.. jenniemae1117@yahoo.com

    July 23rd, 2009 at 4:38 am

  106. mary ann writes ...

    my son was a g6pd suspect but my pedia ask for a reconfirmatory blood test, at 3 months old i took my baby for the test and thank God for it turned out to be normal after all…but im still very careful on not exposing him to foods , drinks and even medicines that could make him sick. i found out that most all infant formula has soya lecitin and even cerelac has soya traces. only lactum i believe has no soya lecitin in it.

    July 24th, 2009 at 11:37 pm

  107. mary ann writes ...

    i thought that only boys are most to have g6pd because of the chromosomes found in their blood. but not in baby girls because we have a spare chromosomes something.

    July 24th, 2009 at 11:40 pm

  108. Junalyn writes ...

    halo…i also have a son na may G6PD deficiency.he is now 3 months and 4th weeks old na…he had a cough,started yesterday… i gave him oregano extract..b4 giving him, niresearch ko muna ung info about oregano and wala namanng components na bawal sa mga may G6PD.Tama ba ung ginawa ko? I didn’t take him 2 his pedia yet kc mas prefer ko sana herbal..
    tsaka, my relatives usually apply mga vicks vaporub/sanitary balm/katinko… i don’t use it kc may menthol nga pero bawal din ba makihalobilo sa kanila if nag apply cla ng mga ganun? i don’t associate with them na nga pag kasama ko c baby kc laging nangangamoy mga vicks vaporub/sanitary balm/katinko…etc..

    July 26th, 2009 at 3:39 am

  109. vanessa writes ...

    hi im vanessa, a mother at 20.my first baby boy was a g6pd victim. i have already a list of foods and drugs to be avoided.what am i worrying is, “is it possible that all of my children in future will be a g6pd victim also?”

    im hoping for your immediate response.

    thank you & God Bless..

    July 29th, 2009 at 8:10 pm

  110. arlene writes ...

    hi,i have a nice 6months old she was positive for g6pd can you pls send me a list of milk which is good for her..

    July 31st, 2009 at 3:02 am

  111. Hafiz writes ...

    hello.. I am myself is having permanent g6pd deficiency. Currently a teenager, i really need the list of the food, drug and medicine that i should be avoided.

    p/s: i was once doing an my science experiment at school using the napthalene, i was hardly breathing at that time till i need to escape the class to get fresh air.. to dont want to fce it anymore..
    please mail me the list of food n etc that i should be avoided. n please state their common names, i’m not really noe the drug and medicines.. plz.

    July 31st, 2009 at 5:54 am

  112. rachel writes ...

    is it safe to use aceti de manzanilla in a g6pd baby?

    August 2nd, 2009 at 2:53 am

  113. miriam writes ...

    thanks for this site. I learned a lot. Yes, i am a mom of two kids with g6pd deficiency.

    August 2nd, 2009 at 5:40 am

  114. miriam writes ...

    since my two kids are both g6pd deficient, how will know whether or not i am deficient too? I have read kasi that there is a tendency that i am also. I wana be sure so that i could avoid the don’ts also. please tell me how.

    August 2nd, 2009 at 5:43 am

  115. miriam writes ...

    may i know also if birch tree is safe for our g6pd deficient babies? what’s teh best milk formula for our baby? hahay nakakastress talaga…much as we want to be “hands-on” in caring our babies…ang problema we are career women who need to be away sometimes just to earn a living. please tel me pls pwede ba ang birch tree milk?

    August 2nd, 2009 at 5:57 am

  116. maru writes ...

    I have a 4y/o G6PD deficent son. At a young age, my son knows the common foods that are not good for them. I think it is important that they really know it especially that we cannot be with them 24 hours a day. If they are left with other caregivers, it is also important for these caregivers to know which ones are “bawal.” Even my two older sons know which ones are not allowed for their younger brother so that just in case I am not there..someone else knows. Moms…it helps a lot to read the labels of the food we give to our children..most have soya ingredients which are not allowed for them

    August 4th, 2009 at 8:13 am

  117. pia writes ...

    please send me the complete list of foods that are not allowed for G6PD..ma_ia1981@yahoo.com

    August 11th, 2009 at 3:30 am

  118. maru b.tan writes ...

    hi,
    i have a 4 year old son who also is a g6pdd. i give him LACTUM milk since.it has no soy lecithin. if i am not mistaken meadjohnson ang gumawa nito. pinakakain ko siya paminsan minsan ng food na may soy sauce like pancit, adobo and the likes so far he’s okay. i insist though that he drinks plenty of water after. i am most careful with his medicine intake. i dont allow him to touch or get near with naphthalene balls or any mentholated medicines like omega pain killer etc.
    yung fava beans ba ay talagang patani?ms.arlene, PAKI linaw lang kasi sa internet ang picture ng fava beans ay almost the same sa baguio beans o habitswelas natin dito sa pinas… nid to know lang talaga. thanks!
    my email ad is mahru_39@yahoo.com

    August 20th, 2009 at 2:09 am

  119. jo-anne carumba writes ...

    hello! good day! i just knew that my child has g6pd. I wish to have a complete list of foods, medicines, substances that has to be avoided so as to prevent the complications. hope to hear from you soon.. God Bless!

    August 23rd, 2009 at 12:05 pm

  120. Azenith writes ...

    hi!
    Im a first mom of 4mos.baby girl who has G6pd deficiency. We live here in the Philippines and I am much very worried about her and not familiar with those foods that i should prevent for her. Can you help me, and please email me at d6msaguion@yahoo.com. I would be very happy and appreciate your favorable response…

    Thank You!!

    Azenith

    September 11th, 2009 at 9:50 pm

  121. Azenith writes ...

    Hi ms. Melissa! Can you send me also some list of foods that are not allowed for my G6pd baby.

    Thanks and God Bless!!!
    Azenith

    September 11th, 2009 at 9:56 pm

  122. lorelie luy writes ...

    I 2 have a son diagnosed with g6pd. he’s nearly one month old now. I would like to know the list of infant formula that is safe 4 him since I am a working mom and I’ll be back to work very soon. As much as I wanted to breastfeed him 24 7 but my situation calls for it to use infant formula.

    September 15th, 2009 at 8:01 pm

  123. Mann writes ...

    My kid is also G6PD positive. I am living in the Philippines and have my kid take Nido milk for years now. Just this morning we found out that it contains Soya Lecithin. Is it safe? We’re going to the doctor next week.

    September 25th, 2009 at 4:31 am

  124. Vanessa writes ...

    Hi! I am from the Philippines and I have a 1 month old nephew with G6pd. Im not very familiar with the legumes and fava beans. Can you send me a complete lists of these fava beans and legumes.
    Thank you very much and hoping for your response..god bless

    October 1st, 2009 at 3:11 am

  125. oman writes ...

    to all parents who are worreid coz their baby have g6pd deficiency, my son also have. sometimes i get worried also like you, but let us always remember that we have a powerful God who can heal that kind of deficiency,all we need to do is to trust him and believe that he can heal our baby.

    October 5th, 2009 at 8:35 am

  126. Lindsay San Miguel writes ...

    Hi!I’m a mom of 2 kids.My son who’s turning 1 mo. this month happens to have G6PD too.i’ve read all the comments here and i’m happy that i learned a lot about G6PD.Can I just ask if it’s really required to have the confirmatory test,coz somebody told that it’s not.Can I also ask for the complete list of foods,chemicals and medicines that should be avoided.here’s my email add lindsay_sanmiguel@yahoo.com.thanks a lot.

    October 9th, 2009 at 4:26 am

  127. mc writes ...

    hi!ung baby ko mron cya G6pD ndi ko alam if pde cya painumin ng bearbrand or birch tree o kya nman anchor! nhihirpan tlga ako! ndi nman kc kmi myaman pra maaford lhat.. tnx!

    October 11th, 2009 at 11:26 am

  128. tina writes ...

    i have a 3 year old daughter with g6pd pls send me an updated list of food and meds to be avoided. Thanks!

    October 13th, 2009 at 10:53 am

  129. agyei dwobeng david writes ...

    ma baby has G6PD and i want ur advise on that for me.please, i would be looking forward for ur reply

    October 16th, 2009 at 10:43 am

  130. husna writes ...

    hi
    thanks to all for your sharing. i’m doing an assignment on tis topic. after searching,ive found this interesting site. i have anemia but i’m not sure if i do have g6pd. every disease have its cure,but da experts or maybe one of us would sum day found it with da help of our Lord..till then,avoid what we still can.

    October 19th, 2009 at 7:51 am

  131. hannah writes ...

    im wondering why of all the vegies AMPALAYA is not okay for g6pd? i dont understand why…. it is not even listed from the food not to be taken by g6pd… how come? maybe it is a case to case basis… the pediatric endoctrinologist can asnwer that i guess… did anyone consulted your endoctrinologist? thanks!

    October 20th, 2009 at 4:06 am

  132. hannah writes ...

    This is based on http://www.webmd.com …

    “A chemical found in bitter melon seeds is related to chemicals in fava beans. If you have G6PD deficiency, avoid bitter melon.”

    I beleived we should only avoid eating the ampalaya seeds which we don’t usually eat…

    October 20th, 2009 at 4:31 am

  133. angel writes ...

    hi.. i have a 3 month old nephew who was diagnosed yesterday w/ g6pd. he is still confined in the hospital right now. i just want to know if what foods should be avoided both the mom and the growing child. does the baby need to be bottle fed? thanks and more power!

    October 25th, 2009 at 6:23 am

  134. hershe writes ...

    hi! my son is 1yr and 8mos, he is also g6pd positive, for the past year he’s been taking NAN HW and NAN reg, they both have soya lecithin but it does not have any effect on him, last week we changed his milk to NIDO jr., it also has soy lecithin but thank GOD it does not also have any reaction on him. my son is perfectly healthy, and i always make it a point to give him nutritious foods and balanced diet so that he will have a stronger defense system. i also always make sure to read the label/ ingredients before giving him any kind of food. we also have to be strong and always have a positive outlook so that our children will not feel the worries and stress that might also affect their well-being. taking care of our children with g6pd is not that easy, but with prayers, constant checking of the food ingredients and taking it one day at a time will help lessen the worries we all have.

    October 27th, 2009 at 7:37 am

  135. jonna writes ...

    hello,im jonna,i have twin son they have g6pd,please send me or e mail.the list of food that i can sere to him,they are 4yrs old now..they eaten much peanut at chocolate..like my older they like much to eat rice with soy sauce..i hope you responce me.thank you.

    October 28th, 2009 at 9:18 am

  136. Gia writes ...

    Hi Ms. Jonna, I also have a son with g6pd he is now 2 years old. What you can do is to equip yourself with loads of information about it. You can visit this website:

    http://www.g6pddeficiency.com/index.php

    Peanuts are also legumes thus it is also contraindicated. You can opt to offer them walnuts and cashew nuts instead. Other foodstuff to avoid is “singkamas” and tamarind because they are considered legumes. You might want also to join g6pddeficiency’s support group, they will send you updates and news regarding g6pd through email.

    October 30th, 2009 at 12:34 am

  137. melissa writes ...

    I have a daughter who has G6pd. she is 1yr and 7 mos. now…what we can do is to check the labels of the foods they ate. And if we went to the groceries, i dont bring her to the section of insect repellants, coz, the moth balls is a big no no for our babies, try to make sure that they can,t smell it or touch it. and also sa mga menthol, the toothpaste she is using is xylogel safe naman siya di siya mint…super mild lang .
    at sa mga meds you dont have to worry kasi bago magbigay ng medications ask your doctor first pero the paracetamols are safe. yung mga meds na nag start ng “sulf” bawal yun talaga..
    kahit ganyan baby natin, they cant still live a normal life, though my limitations lang, okay pa rin kasi prevention lang talaga. At pag nag aral na ang anak natin, let them wear a customized bracelet na may nakasulat na ” I’m a G6pd child” kasi incase mahimatay siya tapos wala tayo sa tabi niya,alam na ng doctor ang dapat ibigay sa anak mo. kailangan ready lang tayo..G6pd is not a life threatening,
    its preventive.
    Melissa

    November 3rd, 2009 at 6:16 am

  138. Razel writes ...

    Hi, im a mother of a 4 month old baby boy with G6PD, im still confused of what medicine and food should i avoid to give for my baby.. even vitamins i cannot give him as i dont know what is ok or not to give.. please help.

    November 4th, 2009 at 2:10 am

  139. Den writes ...

    I have done further researches regarding my sons sickness is it really necessary for a bone marrow transplant for my son to be cured from his sickness?

    November 5th, 2009 at 10:24 am

  140. g6pddconcern writes ...

    My little one had to have a blood transfusion. After he was admitted, that’s when we found out about the deficiency.
    He had not started any baby food by that time but..he had been on baby formula.
    The formula had soy and soy lecithin and Vitamin K in it.

    Doctors barely know anything about this deficiency.
    Anyhow, my instincts are telling me formula played a big role is breaking down his blood cells slowly but surely.

    I’d say stay away from soy products.
    Everyone I think will react differently but..when it comes to babies..we should avoid every thing on the list to avoid.

    Sometimes.. eating something that’s low-risk will seem Ok, but remember..just because we don’t see the symptom doesn’t mean..it has no affect.

    November 9th, 2009 at 10:29 pm

  141. mary rose garboso writes ...

    good day. my 3rd son has a g6pd. diagnose when he was a month old.a result on new born screening. im so confuse what is fava beans. and if its possible it can cure?

    November 10th, 2009 at 11:48 pm

  142. jorjz writes ...

    am so sad dat my baby girl has g6pd.. she cant eat wat she wants… actualy i cant aford 2 buy her milk.. shes growing up and she needs a gud nutrition.. how can i help my baby? and is it ok if i wil giv her anchor milk? please help me!

    November 24th, 2009 at 11:32 pm

  143. nedie s. adunay writes ...

    to all g6pd+ concern we always pray that all happen will reason just always remember that god is always there for us to help us. the good thing we can do is take care our children. God is good

    November 26th, 2009 at 10:27 pm

  144. Crisel writes ...

    can any of you guys recommend a pedia specializing in g6pd? or any clinic within Makati and Pasay, Philippines area?

    November 27th, 2009 at 10:44 am

  145. monico writes ...

    Im nico.. 32 from the province of Capiz Philippines. I have a 2 months old baby boy who has a g6pd def..its really hard for us.. to accept that our baby boy has it…for a fATHER WITH A MEAGER income like me.. it would be very difficult for us…

    November 27th, 2009 at 9:51 pm

  146. Brenda writes ...

    we have a child with G6PD. please send me the list of food and drugs to avoid. thank you

    November 29th, 2009 at 6:23 pm

  147. sheila writes ...

    I have a 4 years old daughter with G6PD pls send me an updated list of food and meds to be avoided. Can you help me and pls e mail me at msvlabating@yahoo.com. thanks!

    December 7th, 2009 at 10:31 pm

  148. Nikia Byrd writes ...

    My son is 2 months old and was diagnosed at 1 week. I would also like a list of food he needs to avoid. Please send the information to tranquility_930@yahoo.com.

    Thank you so much!

    December 9th, 2009 at 7:22 pm

  149. ROSEANN GONZALES writes ...

    thank you for that info..you can snd me a complete list of food should be avoided?my child was confirmed thet he has a g6pd,1st i was sad for that i love my son very much.. thanks

    December 13th, 2009 at 3:31 am

  150. Melissa Jurilla writes ...

    Hello Miss Azenith, baka mas kumpleto na ang list sa UP, kasi nagbibigay yan sila…yung s amnila yan ha malapit PGH..Lahat ng beans iwas ko sa anako, and ampalaya too, at lahat ng may menthol products, espescially yung “moth Balls, iwasan ang lahat ng may soy sauce…
    Ang milk ng baby ko Promil, may soy lecithin siya, tinanong ko na yan so far safe daw yan sa baby kasi smalll amount lang siya…basta wag lang yung “soya milk”…pag sinabing legumes lahat ng veggies yun…yung anak ko napapakain ko ng carrot, potatoe, sayote…yan ang veggies na nakakain niya…1yr 8 mos. na baby ko, so far okay naman sa kanya, at ang toothpaste niya yung xylogel, di siya maanghang…yung iba natotolerate nila ang whit na colgate, pero depende pa rin yan sa bata…
    Pareho tayo lahat ng concern, so dapat aware na lang tayo sa lahat…wag ng maglagay ng mga vicks, omega…etc…maybe salonpas is much better kasi di naman yan maamoy ng baby kung gagamitin mo.At lahat ng beans and peanuts……

    God Bless…

    December 16th, 2009 at 2:37 am

  151. sally writes ...

    good day! hi! my name is sally from cebu city philippines, i also has a kid having g6pd. i am looking for the complete list of foods that is prohibited to my son kylle. i hope i could have it, it would be a great help for me since i dont really have time for the research.

    thank you for your great help!
    more power and merry christmas!

    December 23rd, 2009 at 12:40 am

  152. angel abenes writes ...

    Hi, happy holidays! I’m a mother of a 1 yr and 3 months old boy who was diagnosed to have G6PD deficiency during the newborn screening. Until now, it hasn’t been confirmed yet because we’re living in Pagadian City, Zamboanga del Sur, wherein there are no hospitals or clinics that offer such confirmatory test.

    I am looking for the complete list of foods, medicine and other stuffs that are prohibited for him to take.

    And I also want to ask if it’s really necessary to have the confirmatory test asap because we still need to go to neighboring cities to get that. And how much will it cost me?

    Please do provide me with the info’s. For a single mom like me, it’s really hard to make ends meet. It would be better to know such details so I can prepare. Thanks and more power!

    December 27th, 2009 at 8:20 pm

  153. angel writes ...

    please send any information here: duannesebastian@yahoo.com.

    Thanks!

    December 27th, 2009 at 8:29 pm

  154. lydin herrera writes ...

    3 mos. na po ang baby ko at meron syang g6pd. pwed po pki email ng mga foods n drugs na dpt iwasan. thanks po and GODSPEED!!!!!!!!!!!

    December 27th, 2009 at 11:29 pm

  155. EDISON writes ...

    hi. i too have a g6pd baby. may i ask if those candies, chocolate bars, cookies, biscuits, milk, etc., containing soy lecithin & soy oil not good for my baby? his milk formula has soy lecithin but the doctor prescribed and said it’s ok for him. i also want to ask if aceite manzanilla is bad for him. pls send me a reply to this email. edisonisip@yahoo.com
    thanks and more power!

    January 2nd, 2010 at 3:06 am

  156. Gladys Grace writes ...

    Ei moms and dads, i found an informative site about G6PD, it includes list of drugs that should be avoided as well as trade names of drugs in a specified country. Here’s the site http://www.g6pd.org/favism/english/index.mvc?pgid=avoid

    January 5th, 2010 at 12:38 am

  157. neri writes ...

    my son who is one month old was diagnosed with g
    6pd deficiency too. we went to NIH earlier for the confirmatory test, around p400.00 pesos ang fee.
    click on this link for other info and list of foods/meds to avoid.

    http://www.nsrc-nih.org.ph/images/stories/downloadables/G6PD%20Brochure.pdf

    January 5th, 2010 at 4:15 am

  158. eaya a. perea writes ...

    this is eaya, my son is a g6pd and now he is 6 mos old. may i request you to pls send me the list of food and drugs that is prohibited to my son ean, especially now that he started to eat. thank You and god bless. My email ad is eaya25@yahoo.com

    January 7th, 2010 at 2:33 am

  159. jepoy writes ...

    hi guys after all ive read your comments and suggestion regarding this deficiency. i felt bad for our babies, me too has a 22 days old first baby son who’s been diagnosed with g6pd. im a little bit bit confused of what we would really do to avoid this. if any body there whose got the complete list of the dos and donts plz.. email me at jepoyzng_24@yahoo.com. guyz ill be waiting for ur comments and suggestion. let god help us all. we loved our children so much..

    January 11th, 2010 at 9:49 am

  160. dixie p. writes ...

    hi there, im a mom of a 9month old baby boy. he was found to have a G6PD from his newborn screening. if it’s not too much to ask, i would like to ask a list of foods and drugs that are not safe to be eaten and taken by my son.. his pediatrician gave me a list but its way back 2007. i’d appreciate if you could mail me the latest ones. thank u so much!

    -dixie p.
    inpain_dixie@yahoo.com.ph

    January 19th, 2010 at 2:27 am

  161. dixie p. writes ...

    i’ll be waiting for your reply at inpain_dixie@yahoo.com.ph. thank you!

    January 19th, 2010 at 2:29 am

  162. Jade writes ...

    Hi, my 2 months old son also diagonised with G6PD. Asian dishes mostly have soya sauce, its very hard to avoid. >_<~ Pls send the list to nightsky_lover@hotmail.com thank you very much.

    January 31st, 2010 at 9:36 pm

  163. nora ballatan writes ...

    Good day, my son 5mths old have g6pd, can u send me a complete list of foods and drugs to be avoided and food and drugs safe to take. thank you so much.

    February 4th, 2010 at 2:12 am

  164. Melissa Jurilla writes ...

    hello guys,
    My daughter is turning 2 this april so far so good i did not encounter any problem with her health, im just vigilang to the foods and the drugs and other chemicals na bawal sa kanya na maamoy o mahawakan. you can check it outmaraming website ang G6pd..yes, there is always a confirmatory test for the baby with g6pd kasi there are times na pwede pa silang mag negative, sa pangalawang test. Ako naman Im here in Manila kaya easy lang ang confirmatory test it s in Up manila laboratory malapit sa PGH.so ang anak ko was tested twicw talagang positive siya..basta iwasan lang ang mga foods with soy sauce, mga soya..though ang milk ng anak ko is Promil, may soy lecithin, pero ok lang naman daw yun sabi ng doctor kasi its not a pure soya milk naman. ingat kayo sa lahat ng bagay na may menthol, lalo na ang mga pinapahid katawan wag niyong gawin yan..at iwsan ang maglagay ng mothballs sa bahay niyo kasi its not healthy for our babies its a big no no talaga..sa grocery wag kang pupunta dun sa section ng mga panlaba at mga spray for the mosquito kasi ang smell is healthy also.
    bluberries,ampalaya. legumes yung mga beans bawal yan..at henna sa buhok its bawal also..
    sa medicine naman doctor na niyo ang mag decide niyan basta alway s infom them na may g6pd anak mo. sana aware din ang mga doctors..kasi there are some na walang idea.. di nila alam ang mga bawal..
    thats all for now God Bless us All

    February 4th, 2010 at 8:01 am

  165. mariz writes ...

    Please let me know aside from legumes,fava beans
    blueberry cake and medicines.whatelse i have to
    avoid for my 8months daughter,still wondering
    from time to time.
    i’m not the one who take care at this time
    because my job is here in abu dhabi,my daughter
    is with my sister & yaya.
    please advice me,thanks a lot.

    February 11th, 2010 at 6:33 pm

  166. Janet writes ...

    I have a 3 months old son with G6PD defficiency. I have few questions and somebody can help me.

    1. Can I apply Aceite Manzanilla on my baby’s tummy when he’s bloated?
    2. Is Omega Pain Killer (containing methyl salicylate, camphor and menthol) also need to be avoided?
    3. Is it safer to avoid all kinds of beans for my kid?

    Anybody can help me please….

    February 16th, 2010 at 8:20 am

  167. Janet writes ...

    I have a 3 months old son with G6PD defficiency. I have few questions and hope somebody can help me.

    1. Can I apply Aceite Manzanilla on my baby’s tummy when he’s bloated?
    2. Is Omega Pain Killer (containing methyl salicylate, camphor and menthol) also need to be avoided?
    3. Is it safer to avoid all kinds of beans for my kid?

    Anybody can help me please….

    February 16th, 2010 at 8:21 am

  168. joni writes ...

    pwede ko po bng malaman kng anu-anong mga gatas ang pwede s anak ko rin n may g6pd… anu-ano po b yun, sana po bigyan nyo po ako ng list ng milk na NO SOYA INGREDIENTS,,. tnks…

    February 20th, 2010 at 2:38 am

  169. Dan writes ...

    I have a 6 month old son with g6pd. I just want to know personally from you if promil milk is really ok for him just like the other says. Also, may I know what brand of toothpaste are safe to use? Aciete manzanilla is safe for my baby? What kind of test are available to monitor my son’s health or progress of his g6pd deficiency? and how often? Are baguio beans, sitaw and he like are not safe to eat in the future by my son. How about chocolates with nuts or almonds or even plain are they safe to eat. I just want to know this ahead of time to know how can I protect better my son. Thanks and God bless.

    February 24th, 2010 at 8:31 pm

  170. Dan writes ...

    I have a 6 month old son with g6pd. I just want to know personally from you if promil milk is really ok for him just like the other says. Also, may I know what brand of toothpaste are safe to use? Aciete manzanilla is safe for my baby? What kind of test are available to monitor my son’s health or progress of his g6pd deficiency? and how often? Are baguio beans, sitaw and he like are not safe to eat in the future by my son. How about chocolates with nuts or almonds or even plain are they safe to eat. I just want to know this ahead of time to know how can I protect better my son. Please send on my email your answer thanks and God bless.

    February 25th, 2010 at 8:00 pm

  171. lance writes ...

    can i have the list too?

    February 28th, 2010 at 10:42 pm

  172. lance writes ...

    lance.song@live.com

    February 28th, 2010 at 10:42 pm

  173. Heidi writes ...

    I also have a G6pd deficient daughter, she is now 8mos old and i can say that she’s really healthy. I always browse the net regarding this matter and it can help a lot. All kinds of legumes especially FAVA beans are no no’s to our child,avoid also products containing menthol and foods with soya lecithin..except infant formulas with soya lecithin, regarding to my daughter’s pedia, its okay as long as it’s not pure soya.. please inform me if there will be updates about our children case at john_jeiby@yahoo.com Thank you so much, keep on praying for our child..

    March 1st, 2010 at 1:04 am

  174. Yahya Adel writes ...

    I am 17 6 months years I have G6PD and i know that not to eat and this stuff but now i want to take whey protein it doesn’t contain iron or vitamin C or folic acid or anything which is harmful for my case but it tells in last part ALLERGEN INFORMATION: Contains Milk And Soy (Lecithin) Ingredients everything has soy lecithin and i ate choclates regulary and nthing happens so its ok to take whey protein or not?!please reply fast thank you:)

    March 2nd, 2010 at 2:31 pm

  175. mc writes ...

    to yhaya ayel….. nope! hindi parin pwede…… better if ur goin to consult ur doctor… wag ka mag take risk kc mahirap na diba? GODbless everyone!

    March 6th, 2010 at 1:09 pm



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